I didn't realize how panicked I would be when they took the tube out of Daisy's throat. I was suddenly so scared that she couldn't breathe on her own. And, once she was free of the tube, it was so so sad to watch her choking and trying to cry. But it was my baby's face again. Oh my baby's face. Six months is more than enough time to become addicted to that beautiful face.
It hasn't been a smooth transition. She has only made the tiniest sound and her vocal chords may be temporarily paralyzed. They are giving her steroids to try to open her airways because they are inflamed and irritated. Her breathing is raspy and wet sounding, but she IS breathing.
Daisy has a UTI so she's on antibiotics and her right lung looked a little deflated in an xray. They are thinking that, now that the tube is out, the lung will fill with air again. We're just trying to keep her comfortable. The less agitated she is the easier it is for her to breathe. She is getting breathing treatments every 4 hours and she has fallen in love with a little stuffed puppy from our little friend Gracie. She hugs it and even chews on it's nose.
Before the tube came out our older kids were able to see her. They met with a Child Life Specialist here at the hospital who showed them pictures and prepared them for what it would be like. They drew her pictures and decorated her window. And when she woke up she was calm and peaceful - even happy to see them. She reached for them and they sang to her and talked to her. It was beautiful. I've always known that my kids had a special bond, but this was so amazing. She was trying so hard to open her swollen eyes just to see them.
Now that she is free from the tube I was able to hold her for just a minute. It was like food for a starving prisoner. I didn't want to put her down but she was so uncomfortable and I really want her to rest.
I want to say that we have not had to eat hospital food ONCE today! :) My girlfriend Charity brought smoothies for breakfast and vegan food for lunch and my girlfriends Nicole and Christina are having a pizza delivered for dinner. We are SO blessed to have real food. THANK YOU.
I know I've said this in every single post, but we are so grateful for all of you who have read the blog posts, commented and prayed for our Daisy Belle. We were shocked to find out that over 5,000 people have read the blog today. Thank you for passing it on! Thank you for diving into our terrifying experience. People keep telling me that they can't stop thinking about Daisy and I KNOW that that is the Presence of the God of Life resting over all of us. We are all in this. We are so overwhelmingly grateful for the giant community that has risen out of sadness to surround us. We love you all.